Echo results….

Posted on June 22nd, 2008 by kristie

 Again, I started typing this on Friday night, and just now posted it on Sunday.

Dr Lawry came by Friday afternoon and said Wes’ echo looked great.  He said it was probably his body adjusting to the major surgery he had.  He said that they were a little scared on Thursday, but started going down the checklist of things to weed out.  He said you just didn’t have a minor surgery, it was major, and with what your body has gone through in the past (previous surgeries, cancer, radiation, etc), it was just reacting.  Also, this was the second time Wes has been opended up and that could have had something to do with it too.  I asked about the third day after surgery, and he said yes, that could have had a lot to do with it too.  He said the third day is always the worse.  He said the combination of eating, medication and blood probably did the trick.  He said if all goes well he should be release Sunday or Monday. 

 We had visitors today.  Mrs. Shirley and Coach Shirley are in town on vacation, and they dropped by to visit.  We would like to thank them for stopping by.

Thank you! and Happy Birthday, Sadie!

Posted on June 22nd, 2008 by wes

Hello.  It is about 2:30pm on Sunday afternoon as I type this.  This is the “quiet time” for the patient floors here at The Methodist Hospital.  It seemed fitting to take this time and use it to write a little something to thank everyone that has helped us.

I have been feeling much better as these last few days have passed by.  I should be discharged tomorrow.  We likely will stay the night in Houston before heading home early Tuesday.  Hopefully, we can start to begin getting a bit of normalcy to our lives.

I’d like to now thank everyone that has helped us throughout this and my many other medical adventures.  Amazingly enough I probably don’t know 98% of those of you that have been praying for me for years now.  I don’t know that I can ever fully express my gratitude to those that have helped us.  Only know that if there is ever anything we can do, we will do our best to reciprocate the generosity you have shown us.

THANK YOU ALL!!

I would also like to wish my niece, Sadie, a very Happy 7th Birthday!!  Sorry we couldn’t be there….a pool party certainly sounds fun.

-Wes

P.S.  As I was about half done writing this, the “code blue” alarm for the person in the next room went off.  Everyone rushed in.  I think he is going to be ok, but it seemed pretty serious for a while.  They have taken him to the ICU.  So as I’ve said before, don’t forget that things can always be worse.

Finally an update…..

Posted on June 20th, 2008 by kristie

Sorry for not posting, but just haven’t had the time.  Here is the low-down… Hope this all makes senses.  I think I started this post on Tuesday, and it is now Friday.  Also, for some apparent crazy reason while I am typing the cursor will jump up a few lines and start typing on that line.  I think I fixed most, but there may be some that I missed.  When I started this on Tuesday, I was so sleepy and would catch myself drifting off.  I apologize for anything that doesn’t make sense

Around 4, they came to the waiting room to get us before they took him back, so my mom and I went back to see him.  While we were in there, they gave him the shot they told him he had been waiting all day for, and it didn’t take long to kick in.  The surgery was finished between 8 and 8:30.  Dr. Lawrie talked with me, my mom and dad.  He said everything went well, and he was very pleased.  He wasn’t able to do the ablation procedure b/c of too much scar tissue.  I want to ask him about that scar tissue. (I asked him Thursday and he said that it is from everything Wes has had done.  He said there was no cancerous tissue in there. He said this procedure is 95% successful for at least 10 or 15 years.  He is a very nice doctor, and took the time to answer our questions even though it was almost 9.  He apologized for being so late, and explained to us why it took so long to start the surgery.  He had a carryover from Friday that had to be worked in.  We got to go in and see him for the last visitation hour at 10.  When I first saw him, it upset me, but the more I was in there it got better.  He looked a lot better than I thought he would look, but seeing the ventilator just was too much especially after the long stressful day.  While I talking to the nurse, he started waking up.  She said he hears your voice, and he started reaching for my hand.  He started fighting the vent, so she tied his hands back down and gave him some medicine to knock him out.  His nurse that night is a distant cousin of his.  When I walked in, she said, “Where are y’all from, because I think I am kin to y’all.”  I looked at her name tag and it said Monceaux.  I said he is from Oberlin and she said, “Yep, I am kin to him.”  I said, “is that where you are from,” and she said, “sort of.”  It is such a small world.  I felt a little better knowing she was taking care of him, so I decided to go back to hotel.  I knew she would call if something went wrong.  Tuesday:  I got up at 4:45 so I could be at the hospital for the 6:00 visitation.  He was a little alert, and had the vent off.  They took it off about 3.  He was in and out.  Went back in at 8, and he was about the same, in and out.  He would talk a little more every time we would go in, and by 12 he had all but one tube out.  He said those chest tubes WERE NOT FUN.  They said he was ready to be moved out, but they were waiting on a room.  They moved him about 5:30 to a semi-private room.  We told them we wanted a private room, but there were not any available.  We were assured as soon as one came available we would get one.  He was put in the room with an older man, and bless his heart(no pun intended).  He kept Wes from sleeping, because he would have dreams and make noises.  He did that a lot this morning too.  He did it one time and scared me.  I thought he was dying.  His mother was there with him and she jumped up calling his name, and the nurse came running in there too.  They finally got him awake and he said he was having a bad dream.  I told Wes I want a private room, but I don’t want him to die.  He seemed to be a nice man, but he was what you call an “Old Fart.”  I can assure he doesn’t like the food here either.  He told the food service girl that the food tasted like crap and that he wanted a damn ham sandwich after she told him he couldnt’ have one.  He keep saying I just want a ham sandwich and I don’t know why they will not give it to me.  He told his mother that he believes that if it is on that menu then it isn’t good.  They give the patients a menu to order from for breakfast, lunch and dinner.  It takes about 45 minutes to get it.  They did that in Vicksburg when I had Emma Grace.  They gave me a menu and I chose what I wanted for each day.  Wes hasn’t chosen much, just jello, ice cream and juice.  Back to the old man.. He was a character, and he spoke his mind.  I don’t think he liked the male nurse today, and he all but told him that. He later said he doesn’t have an ounce of patience . When they moved Wes in the room, there were three women there.  Wes said they were talking about Emma Grace, and that they shouldn’t allow children to come in the room because of infection.  I am glad I didn’t hear them.  Only his mom had been there today (Wednesday), but the other two ladies were coming later.  They were suppose to be bringing soup to his mother, and he said I sure wish they would bring me some.  She told him that they were bringing her some soup so may be they would bring him, and he said, “but I know Pauline isn’t going to bring me any.”  His mom said, “She might, and why do you say that.”  He said, “Because we don’t get along, and I don’t like her.”  He said, “All she ever does is argue with me.”  He said, If I say it, she says or does the opposite.”  I got the drift that he doesn’t like her.  Thank goodness we got moved before the other two came.  Wes said today (friday) that all those women did were argue or fuss the whole time they were in there.  They moved Wes between 5 and 5:30 on Wednesday.  A cardiologist came by shortly after and said that he needed to eat, move around and use the bathroom before he could go home.  He said everything looked good.  My mom and Emma Grace went back to the hotel room, and I stayed with Wes.  He had chills and fever, which made his chest hurt because he was shaking so much.  They gave him medicine and it seemed to help.  I think he got a little bit more sleep than the night before, but he cannot get comfortable in the bed.  Yesterday morning, he just wasn’t feeling good.  He had no energy and fever on and off all day.  He gets the chills and shakes so bad that it makes his chest hurt.  Yesterday(Thursday), was the third day after surgery so I expected it to be bad.  Dr. Lawrie, the surgeon, came by and said he had ordered an echo-cardiogram to check the sac around the heart to make sure Wes doesn’t have an infection.  He said this is common after heart surgery.  He will start him on some steroids today that should help it.  Wes is down right now having the echo.  They gave him one unit of blood last night b/c he count was 7.7, he was a little pale and just didn’t feel well.  The cardiologist doctor said anytime you go below 8 they will give blood.  His blood count was really good after surgery, but my aunt, who is a lab tech, said that it is common to get a false reading after major surgery.  She said it will show high, but a few days later you get the true reading.  He still doesn’t feel real good this morning.  He is very sore, and has no energy.  He only eats jello, so I think if maybe he would eat a little more he might get some more energy combined with getting the blood.  I think that is all concerning the surgery and after.  I have been trying to write everyday, but just get distracted.  It is nice that they have wireless here.  At least, you can get on the computer and it doesn’t seem like the day is just dragging on and on.

We are now staying at the Marriott, which is connected to the hospital.  It is so nice to just walk across the crosswalk and never have to go out and fight traffic.  It is also nice because my mom and Emma Grace can just walk across and then go back when EG gets tired.  We had been at the Holiday Inn a few blocks away, but we moved on Wednesday once everybody left.  Wes’ parents left Tuesday evening, and Tammy and my dad left Wednesday afternoon.  Kim flew in Monday morning and left Monday night, b/c she had to have a stress test done on Tuesday.  She was able to get us this room at the Marriott for much, much cheaper than the regular rate, and so thanks to her for doing that.  Bro. Ron Ferrington came down Sunday evening and left Tuesday morning, and thanks to him for coming down.  We have had phone calls after phone calls, text messages, instant messages, emails, etc, and thanks to all who have been checking in on us. 

 Also, thanks for all the prayers.  Please keep them going.

Emma Grace has been very good.  She loves to come see her daddy.  She has given him a few cards that she found down the hall in the waiting area.  She drew him a heart and then colored it red to match his heart pillow they gave him.  She wants to see her cousin Lizzy.  She asked all yesterday afternoon for her.  Everywhere we went is was where’s Lizzy, I want to see my cousin Lizzy, etc.  She even woke up this morning at 6:45 asking my mom for Lizzy.  Last night, Karri emailed a picture of Lizzy and Emma Grace had a FIT.  My mom said I should have heard her.  We wish we had a webcam, so they could see each other.  Other than that, all she does is color, watch dvd, sing and dance.  She discovered that the hotel clock has different buttons to push and different types of music will play.  She thinks that is so neat.  She is starting to talk so much in sentences that I don’t know where she has learned all these words and when to use them.  It is amazing.  Tuesday night, my mom, dad, Tammy and Emma Grace rode the schedule bus back so I could come to the hotel later.  Emma Grace calls it the school bus.  She NEVER shut up on that bus.  She had them all laughing.  She sang the wheels on the bus go round and round.  The driver said, “there isn’t a little girl on here, there is a big girl on here.”  She gave him his tip and he said thank you and she said your welcome.  She is becoming so polite with her manners except she will not say yes ma’am, etc.  When she sees a taxi, she starts singing the taxi song from noggin.  it is so funny.  We took her to the pool Sunday, and that is all we have heard.  We had to have the key to get to the pool, and now, every time she hears key, she says go to pool.  She loved it.  At first, she wasn’t so sure of it.  The hotel we are at now has an indoor pool, but she hasn’t see it yet.

They just brought Wes back from his echo, and I am going to go take a shower.  Like, I said, I hope this update makes sense.  I have been typing it for four days. I will update later with echo results.

Address….

Posted on June 19th, 2008 by kristie

If you would like to send a message to Wes, you can send him an e-greeting at www.methodisthealth.com, click on e-greetings, choose The Methodist Hospital and they will deliver it to him.  He is in room 970 in Dunn tower.  If you send a card, it might not get here before we leave.

Surgery Day….

Posted on June 16th, 2008 by kristie

Well, they have just took him back, and it is 2:00.  It was suppose to start at 7, but they were a little behind.  They had to do blood work, an EKG and a chest x-ray.  I asked them why we didn’t come in earlier for that and they said because they didn’t want us to have to come on Friday.  The nurse said it would take about four or five hours.  He wasn’t too happy when they told him he would have a tube down his throat.  They also shaved both legs and his chest.  We have been taking pictures, and he asked the nurse if they would take a picture of him opened up.  She said they would.  I guess that is all for now.  I will update when we know something.

3:30:  He is in pre-op, so it will still be a while.

7:15: I checked with the ICU nurses’ station and they said everything was going well.

We are in Houston…

Posted on June 16th, 2008 by kristie

We made it to Houston around 10 last night, and we are so glad we came on yesterday.  The drive wasn’t too bad; however, since we come here so much we have gotten used to the drive. 

We got our bed, living room furniture and most of Emma Grace’s room moved Thursday evening.  Thanks to Grammy, Karri, Amber, Lizzy, Greg Ezell, Brandon Ezell, Austin Ezell, Angela Ezell, and Cheyenne Ezell for helping us move.  There was another man there but I don’t know his name.  We spent Thursday and Friday night there, and it was so nice to woke up in it.  I thought we would NEVER get to this point.  We still have lots to move when we get back, but thank goodness we can take our time.  There are a few things that need to be worked on or fixed.  The inspector is coming Tuesday, I think.  We tried to get him to come Friday evening, but he wouldn’t.  Hopefully, we will pass and everything can be finalized when we get back.  We are hoping to sign the papers either the 27th or 30th. 

Emma Grace is still entertaining.  She says the funniest things.  I wish I would think to write everything down, but I always think about it when I am sitting down to do this.  She was so excited that we were coming here and she could see big, tall buildings, and when she did, she let us know. 

We gave Wes some collage pictures of him and Emma Grace.  I also ordered him a blanket with one of the collages.  Emma Grace is also getting one.  They are suppose to be delivered here one day this week.  Thanks Karri for doing them for me.

Well, we need to go to Target, and someone is demanding to go.  We thought about going to the Aquarium, but I don’t know.  Wes doesn’t really need to walk a lot.  He hasn’t been feeling well.  He had to stop taking his medicine on Thursday, and has been getting a little more winded(if that is a word) and tired when he walks.  I don’t know if he could have gone much longer.  Guess we better get to Target.  Later….

The surgery is..

Posted on June 3rd, 2008 by kristie

The surgery is set for Monday, June 16th at 7:00 a.m. We have to be at the hospital at 5:30. It should take about 90 minutes to do the by-pass and then about 10 minutes to do the procedure to take care of the Afib. I am not sure what they call that procedure, but they are going to do that while they are in there. We will be leaving on Saturday the 14th, so we can get down there and rest. We don’t want to rush it on Sunday.

Tomorrow they should start preparing for the floor. I haven’t talked back with the guy today, but yesterday it was still Wednesday. The a/c is working VERY good. The electrican/plumber finally came back today. He fixed some wiring issues and put up a few lights he hadn’t. He says he will be back when it is time for the toilets and sinks. (We’ll see.) My mom got a guy to come paint the upstairs for us. Wes had started on it, but never felt like finishing it. It shouldn’t take him long to do it. Guess that is all….

Relay for Life and more…..

Posted on June 1st, 2008 by kristie

Wes was honored at the Franklin Parish Relay for Life Friday night. We had a good time, but there were not as many people there this year. They had it later on in the month, and plus they had to contend with baseball/softball. Emma Grace had a good time. They had a Hannah Montana look-a-like, and she LOVED her. Now, all she wants to watch is HanTana. Wes downloaded some videos off of youtube for her, and she knows all of the words to HanTana’s songs. We have a few videos of her singing along and doing some of the exact things Hannah Montana is doing on the video. The funniest thing is that she reaches out to shake hands. She is certainly our little entertainer.

Hopefully, tomorrow we will know the exact date and time of the surgery. I hate waiting. I know it will be here before we know it. I know Wes doesn’t want it to hurry up and get here, but all this waiting is making me worry more and more. We have a hotel room booked that has two bedrooms and two baths, plus a kitchen. We will keep that for a few days and once everyone else goes home, my mom, Emma Grace and I will move to a smaller room.

Well, we were suppose to get our floor tomorrow; however, the plumber didn’t hook something up to the a/c. Aaron hooked it up and it was working, but it started leaking while we were down there this afternoon. Thanks goodness we were there or it would have been a mess by morning. Wes turned both a/cs off, but it was the bottom one leaking. He turned the top one back on and the outside unit wouldn’t run, so we called the a/c man and he is coming tomorrow. Aaron stopped by when we were leaving and he looked at it, but he didn’t know what was wrong. Hopefully, the plumber/electrican will show up in the morning and get his butt to work on the stuff he should have already done. This puts us hopefully getting our floor on Wednesday. The appliances will be here on June 10th, so I am hoping the floor is down.

Well, I need to get to bed. I have a full day tomorrow of making phone calls, washing clothes and finishing up some monogramming. As soon as I know the time of the surgery, I will post it….

We are back…

Posted on May 31st, 2008 by kristie

We are back from Houston. We saw the radiation doctors, and they were TOTALLY shocked that he had damage from the radiation. They said radiation gets blamed for a lot of things, but that it did cause the damage. The doctor said this is the first case ever that damage happened so fast with such a low dosage he received. She said you start seeing damage around 7 years, but mostly 10-15. Like I said earlier, they were TOTALLY shocked. As we were leaving, Wes said that since he was the first case that they should write a paper on him. His doctor agreed, so when we go back in July for his regular check-up, they will do some genetic testing. She said that it could be something genetic that makes him so sensitive to radiation. They apologized, but we told them that there wasn’t anything to apologize for. We knew going into the radiation that damage could and probably would be done.

After the radiation doctor’s appointment, we rushed over to the heart doctor’s appointment. He is from Australia, but he walked in the door and said, “How are y’all?” I thought he isn’t from Australia, but once we got to talking to him you could tell. There were certain words he said you could tell he still had his accent. He was a very nice and personable doctor. He acted like this surgery was nothing, but he does this everyday. In 1996, he was listed as the top heart surgeon in Good Housekeeping magazine, but to sit there and talk to him he was just like your local doctor. I was very shocked at how he just talked to us. I figured he would be so busy that he would come in say ok this is what we are doing, now tell me when you want it done. He talked about heart surgeons, insurance, how he didn’t have any money because he had two daughters and one just got married. He told Wes he should really considering going to medical school that was after Wes said he thought he might would like to do something in the medical field. He encouraged Wes to go on and get his PhD in Computer Science, which he was able to start doing when he got sick. He said that he has always told his kids that he would take care of them as long as they were going to school. His son is about to graduate from Baylor Medical School. For him to be a busy heart surgeon, he sure made us or me neither feel very comfortable.

The trip home was loooooonnnnnnnngggggg. We headed out of Houston at 5, but the traffic wasn’t that bad. We cannot go to Houston without eating at Saltgrass, and as always, it was great. We made it home about 1:30, and CRASHED. We woke to the phone ringing this morning with the message that WE HAVE ELECTRICITY, which is very shocking. I checked the messages on the way home last night, and we had a message from Entergy saying that our power was set to be turned on on June 17th. I was PISSED. I called Aaron and he had already been by there, but he couldn’t get the A/C to turn on, so he is calling the A/C man. The painter is still touching things up. I called the floor guy and he is suppose to call me this afternoon to let me know if he can come Monday. We are starting to FINALLY see the light at the end of the building tunnel. I don’t want to get too excited, because every time I do something comes up.

I must tell you that we have the sweetest little girl. She was so good the past few days. She has had to sit in a car seat for at least 20 hours the last two and half days. The only thing she fussed about was wanting to go to Target, and by golly, I am taking that baby to Target hopefully tomorrow. I wish we could have gone to the one in Houston, but we just didn’t have the time. When Wes came out of the heart doctor, she said,”Daddy, you all better now.” She is the sweetest thing, and knows exactly what is going on. She knows her daddy isn’t feeling well. I am not sure how well she will handle this surgery. She was a baby when he had the first, so she wasn’t as demanding. Also, we will be in a major hospital where I don’t think we will get the personal treatment we received in Monroe, which is the only disadvantage to not having it done local. However, this is the best place to have it done.

Guess that is all for now. I will update as soon as I know the exact date of the surgery. We have talked with Dr. Burkett’s office, and we have decided to go with June 16th. We have called Dr. Lawrie’s office in Houston, and they are checking with the surgical center to make sure they have that date available. Once I know, I will post it. Have to get ready for Relay for Life…. Later….

We are in Houston….

Posted on May 29th, 2008 by kristie

We made it last night around 12:30, and we all CRASHED.  Yesterday was a very long day.  The doctor’s appointment in Monroe didn’t go as planned, but we were expecting the news we heard.  Wes told them he hadn’t been feeling as well as he did when he had the first stent put in.  Dr. Burkett decided to go on and do a stress test since we were going to Houston.  He trained here in Houston, and said if he had a heart problem, Houston is where he would be.  When you hear a doctor tell you that, you know where you need to be.   The stress showed that the stent wasn’t working, so they told us to head to Houston and Dr. Burkett would contact the dr down here.  We are up early and Wes has just heard from Dr. Burkett.  He is on the phone right now with the heart doctor here in Houston to get an appointment.  He has an appointment at 1 with his radiation doctor at MD Anderson.  The heart doctor is associated with several different hospitals here in Houston, but all are right down the street from MD Anderson.  We got lucky and got a room at the Rotary House, which is connected to MD Anderson.  When I called last week, they didn’t have anything, but I called before we left yesterday and they had one.  It is nice to stay here, because not just anybody can stay here.  Well, his appointment is at 2:30, and I hope our appointment with the radiation doctor doesn’t run over. 

We had our inspection this morning so we could get the electricity turned on, and WE PASSED….. However, the police jury didn’t havea sewer permint on file, so that is a hold up.  I talked to Aaron and he said he would find out what needed to be done.  That is all for now……